Having a child with complex heart disease can be stressful for the entire family. There is support available for families, children and young adults.

Self Care for Parents and Caregivers

One of the best ways a parent or caregiver can support is a child’s development is to take care of yourself as well

• Get plenty of rest and sleep when you are able to 
• Eat a healthy, well balanced diet and drink lots of water 
• Try to get some physical activity every day (go for a walk, exercise, yoga)
• Spend some time with positive support people in your life
• Journal about your experiences 

Resources for Hospitalized Families

• Cardiac Social Worker: Denisse Valor, LCSW             
• Child Life Specialist: Becky Pickard, M.S., CLSS 
• Cardiac Psychologist: Dr. Silvia Sommers, PysD
• Chaplin/Pastor (Family Centered Care Services)

Online Resources

• CDC’s Developmental Milestones
• FL Department of Health Early Steps 
• The Florida Diagnostic & Learning Resources System (FDLRS)-South
• Miami Dade County Public Schools Department of Exceptional Student Education- The Parent Resource Hub
• IEP vs. 504 Plan
• Requesting an evaluation for your child
• Requesting assistance for my child who may need special services FAQ’s for parents
• Family Empowerment Scholarship for Students with Unique Abilities (McKay Scholarship Program will join Family Empowerment Scholarship Program effective July 1, 2022)
• Florida International University Center for Children and Families
• UM Center for Autism & Related Disabilities
• Parent to Parent Miami

Counseling Services

Catholic Charities 

• Provides family and individual counseling.  Locations in West Palm Beach, Miami, and Fort Myers area.  

Jewish Community Services of South Florida

• Provides counseling services and psychoeducational testing.  Services available in English, Spanish, and Creole.