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“At age 11, Elena began having violent seizures that would not stop, even with medicine. She was being transported from school to the hospital at least once a week. We had to be with her every second of the day because of the possibility that she would have a seizure. In 2011, we were referred to Nicklaus Children's Hospital where doctors ran a number of tests and determined that surgery was the best option for her condition. She had two surgeries, one to map her brain and another to remove a cavernoma. Her recovery was quick and she has been seizure free ever since. Elena is now a regular 13-year-old girl enjoying middle school without having to worry about seizures. The caring medical professionals at Nicklaus Children's Hospital were amazing. We are forever indebted to them for giving us back our daughter.”
February 26, 2025 -
For 40 years, Nicklaus Children's Hospital has been a leader in pediatric epilepsy. Learn more about the comprehensive care we offer for the most complex chronic cases.
January 23, 2025 -
At Nicklaus Children's Hospital, gene therapy offers a promising treatment that dramatically improves life for children with Duchenne muscular dystrophy. Recognizing the potential wielded by a new gene therapy, Nicklaus Children’s became one of the first in the nation to offer ELEVIDYS-dystrophin soon after the FDA's 2023 approval.
While enjoying a day on the water, Katy was involved in a devastating boating accident that left her with a traumatic brain injury. Within moments, her family’s world was turned upside down.
April 03, 2025 -
Matthew was diagnosed with Phelan-McDermid Syndrome (PMS), a rare genetic disorder that affects development, speech, and cognitive ability, and requires extensive medical care and round-the-clock support. Despite his challenges, Matthew radiates love and joy, and his family is advocating for increased awareness of PMS while seeking potential treatments for the condition.