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“I was brought in after a fifty five minute grand mal seizure on July 11, 1976 (the day before I turned 6). I was brought in on a rescue truck, not an actual ambulance. I remember waking up on the stretcher next to a fire fighter and I was in the open air watching the trees go by above me. I remember a lab technician drawing my blood and he was amazed that I didn't flinch. I just watched him warily the whole time. The next day on my sixth birthday a church group visited with board games wrapped as presents for the kids on my floor. I got Candyland. The family that my family and I were visiting the day before came and visited. We had been making clothespin people that day with scraps of yarn, fabric, markers and glue. As my birthday present from them they had made a doll house from old boxes and gave me the dolls they had made too. Dr. Duenas is the only doctor I remember. After that first hospital visit I had only seen him in the clinic. I remember it all being a very pleasant experience. Thanks for letting me share.
February 26, 2025 -
For 40 years, Nicklaus Children's Hospital has been a leader in pediatric epilepsy. Learn more about the comprehensive care we offer for the most complex chronic cases.
January 23, 2025 -
At Nicklaus Children's Hospital, gene therapy offers a promising treatment that dramatically improves life for children with Duchenne muscular dystrophy. Recognizing the potential wielded by a new gene therapy, Nicklaus Children’s became one of the first in the nation to offer ELEVIDYS-dystrophin soon after the FDA's 2023 approval.
While enjoying a day on the water, Katy was involved in a devastating boating accident that left her with a traumatic brain injury. Within moments, her family’s world was turned upside down.
April 03, 2025 -
Matthew was diagnosed with Phelan-McDermid Syndrome (PMS), a rare genetic disorder that affects development, speech, and cognitive ability, and requires extensive medical care and round-the-clock support. Despite his challenges, Matthew radiates love and joy, and his family is advocating for increased awareness of PMS while seeking potential treatments for the condition.