Neuromuscular Program

South Florida's Top-Ranked Hospital for Pediatric Neurology and Neurosurgery

Specializing in the treatment of infants, children and adolescents with muscular dystrophies, neuropathies, spinal muscular atrophy and congenital myopathies.

 

The Neuromuscular Program at Nicklaus Children's Hospital offers multidisciplinary evaluation, treatment and support for children with neuromuscular disorders, including muscular dystrophies, neuropathies, spinal muscular atrophy and congenital myopathies.

A Multidisciplinary Team of Specialists

The program brings together an entire team of pediatric specialists to consult in the diagnosis and management of each child during monthly collaborative clinics. This team approach simplifies the care journey for families, enabling them to consult with all needed specialists during a single clinic visit and benefit from the collective assessment of the entire team. The specialty team includes physicians in the following pediatric specialties:

The Care Experience

During the monthly clinics, patients have the opportunity to meet individually with each member of the clinical team to discuss the patient’s care status and specific needs. During the clinic, physicians and the patients also consult collectively to ensure that all aspects of care are addressed from a multidisciplinary perspective. Between visits, the clinical care coordinator is available to address questions and concerns.

Wheelchair/Seating and Mobility Clinic

The Wheelchair and DME (Durable Medical Equipment) Clinic held once a week, serves children with a variety of musculoskeletal conditions ranging from muscular dystrophy, spina bifida and cerebral palsy. Patients can be evaluated and fitted for wheelchairs, specialized walkers, chairs and bath equipment. There is a multi-specialty group of providers including a physical therapist, orthotist and wheel chair vendors who evaluate the each patient’s abilities and needs.

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Prevalence of all neuromuscular disorders per 100,00 children

Stories to Inspire

Santi brings joy to everyone around him, despite his medical limitations. At only age 7, Santi has memorized the telephone numbers of all his favorite people, including some of his nurses at Nicklaus Children’s Hospital.
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Awards & Associations