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Skull deformity that doesn't allow the brain to grow properly
Published on: 5/25/2017
When their first baby Ellis was born last year, Abi and Peter Obre didn't notice the slight ridge on the front of his skull. In February, Ellis underwent a procedure at Nicklaus Children's Hospital to correct the condition.
Empowering Families Facing a Beckwith-Wiedemann Syndrome (BWS) Diagnosis If you have a child or adult family member with Beckwith-Wiedemann Syndrome, or BWS, then you know just how challenging it can be. To provide patients with BWS and their families with medical and emotional support, Nicklaus Children’s Hospital began hosting the Beckwith Wiedemann Syndrome (BWS) Patient & Family Conference.