Hemophilia Treatment Program

A federally designated  Hemophilia Treatment Center (HTC)

Providing children with a full range of services including diagnosis, treatment, counseling, and education of rare bleeding disorders.

 

The Hemophilia Program at Nicklaus Children's Hospital is a comprehensive pediatric program for patients with hemophilia, von Willebrand disease (VWD) and rare bleeding disorders. The clinic is a state and federally designated Hemophilia Treatment Center providing a full range of services including, diagnosis, treatment, counseling and education.

Our multidisciplinary team of specialists work together to promote health and medical management of the condition as well as the transition into adult care.

Conditions we Treat

The program offers treatment for a broad range of bleeding disorders, including:

A Team Approach to Care

Families in the care of the Hemophilia Program benefit from collaborative clinics in which they have an opportunity to consult with the entire team of specialists, eliminating the need for multiple separate specialty appointments. The team participating in these clinics includes:

The hemophilia specialists at Nicklaus Children's are trained to provide emotional and psychological support for children and their families. We use a multidisciplinary team approach that includes physicians, nurses, therapists, nutritionists and other health care professionals dedicated to helping patients live healthy lives.

Stories to Inspire

Kevin tenía solo dos años cuando se le diagnosticó hemofilia, un trastorno hemorrágico poco frecuente que impide que la sangre coagule correctamente. Aprendió a autoadministrarse los medicamentos, los cuales debía inyectarse cada otro día. Hoy, Kevin dice que le debe su éxito conteniendo su enfermedad a su familia, a su equipo de atención y, por supuesto, a él mismo por ser su propio defensor.
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